Friday, October 3, 2014

Mitrofanoff Appendicovesicostomy Moms...Are You Out There?

I'm taking a break from the usual programming here (whatever that means) to reach out for help from anyone with a Mitrofanoff Appendicovesicostomy.


I need help.  My son had his first APV in 2013.  Shortly after he began gushing urine from his stoma.  So the APV was revised in August 2014.  It has begun gushing again.  It's interfering with his daily life.  I need advice from other APV peeps.  What worked for you?  What caused your leaking?  What fixed your leaking?  Did you find a pad of sorts that would keep you dry?


You can leave a comment or email me at victoriaekeen@gmail.com

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